A cure for pediatric Epilepsy, but only for some kids?! The fight is on.

Everyone,

If you read anything today, please let it be this.

Wisconsin lawmakers are currently considering a bill that would allow for the legalization of CBD oil for the treatment of pediatric seizures. This oil is intentionally non-psychotrophic with low levels of THC, which is the chemical in marijuana that produces the “high”. The CBD oil has been used successfully to treat a type of severe childhood Epilepsy, one which can be deadly. The effectiveness of recent CBD treatments in states that allow medicinal marijuana has also prompted physicians that have been against the use of medical marijuana to reverse their decisions. One of the first things I did when I learned of CBD oil was to watch this segment with Dr. Sanjay Gupta, in which I was introduced to a little girl from Denver, Colorado named Charlotte.

Charlotte was suffering from a severe form of epilepsy that was literally stealing her life away. My heart hurt for this little girl and her family. After witnessing the miraculous changes that the CBD oil treatment provided, I was blown away. It was nothing short of amazing. This treatment could save the lives of so many kids. I remember thinking, “All parents with children suffering from Epilepsy need to know about this NOW!”

The horrible truth is, for some parents, learning about it is all they can do. Any child living in a state that does not allow medicinal marijuana has no access to CBD oil. Desperate parents can finally see the miracle they had been praying for, but it remains just out of their reach. Their child’s life is at stake every single day, and every single day they are denied the chance to save him or her.

HOW CAN THIS BE HAPPENING? How can a legislative body continue to deny a child’s right to what might be their only means of survival? It’s time to educate our lawmakers and push for a change in legislation NOW. Every minute counts! EVERY SINGLE MINUTE.

I first learned about CBD oil through my friend Sally Schaeffer, a devoted mother of a special needs child, Lydia. _LydiaLydia has a rare chromosome disorder which causes various illnesses but also epilepsy. Lydia’s seizures increased in 2013 and through an EEG they found she has a very rare seizure disorder which medications will not relieve. Brain surgery has also been discussed but physicians have no guaranteed success. The risks of surgery also include stroke, infection and even death.

Because of this, Sally has begun a tireless crusade to educate people and bring this bill forward in this legislative session. Take a minute to watch this video of Sally’s testimony at hearing for a bill that would legalize CBD oil for use in Wisconsin. (Even if you oppose the use of medicinal marijuana, that this bill does NOT include medicinal marijuana outside of CBD oil.)

http://www.jrn.com/tmj4/news/Lawmakers-hear-testimony-on-cannabis-for-sick-children-245281941.html.

Go watch the video. I’ll wait.

Listen to her. I don’t mean just “listen to what she says on the video”. Listen to HER. Listen to her voice. Listen to her when she looks up and asks, “What would you do?” For one second, imagine you were sitting in her chair. That it was your child’s life at stake. Think about going to sleep tonight, every night, terrified that the next seizure might kill your child.

When I talked to Sally recently, she had this to say, “For 6 years I’ve sought the best therapies, physicians and care. I’ve worked hard to help her be the best she can be. I just can’t sit back now and possibly lose all we’ve accomplished. Not only that I couldn’t take losing HER.” _LydandSallyI can’t even fathom being in her position. The thought of Lydia being denied CBD treatment makes my blood boil.

If you live in Wisconsin, I ask you –I beg you– to take a few minutes out of your day to write your legislators and state your support for the legalization of CBD oil for use in pediatric Epilepsy. This one small action could save lives. You could be a hero.Click here to contact your local representatives.

Visit Lydia’s website, http://www.lovinglydia.com for more information. _LydandDadGet to know Lydia, she is an incredible kid! It’s a great resource for learning more about CBD and how to join this fight.

It’s time to make some noise, whether you live in Wisconsin or not. It takes a village to raise a child. Right now, it will take a village to save a child’s life. Step up. Be the voice for these kids. Be THEIR hero.

One comment

  1. Amanda

    I am Amanda from texas usa,my son was suffering from this devilish disease called epilepsy when i heard about how cannabis oil have been curing this disease i decided giving it a trial,i saw an article on how cancer centre London provides cannabis oil so i contacted them via email londoncancercentre@gmail.com and within 5days the cannabis oil was delivered to my address and apart from that he gave me instructions on how to use the oil. My son is now free and no longer an epileptic patient.To my greatest surprise this cannabis oil works like a magic.

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